Creating a lesion-specific "roadmap" for ambulatory care following surgery for complex congenital cardiac disease.

{"article_title":"Creating a lesion-specific \"roadmap\" for ambulatory care following surgery for complex congenital cardiac disease.","author":"Wernovsky G, Lihn SL, Olen MM","journal_title":"Cardiology in the young","issn":"1467-1107","isbn":"","publication_date":"2021 Dec","volume":"27","issue":"4","first_page":"648","page_count":"","accession_number":"27373527","doi":"10.1017\/S1047951116000974","publisher":"Cambridge University Press","doctype":"Journal Article","subjects":"Ambulatory Care methods; Ambulatory Care standards; Heart Defects, Congenital surgery; Adolescent; Cardiology education; Cardiology Service, Hospital; Child; Humans; United States; Young Adult","interest_area":["Cardiology"," Pediatric Medicine"," Emergency Medicine"],"abstract":"Over the past 20 years, the successes of neonatal and infant surgery have resulted in dramatically changed demographics in ambulatory cardiology. These school-aged children and young adults have complex and, in some cases, previously unexpected cardiac and non-cardiac consequences of their surgical and\/or transcatheter procedures. There is a growing need for additional cardiac and non-cardiac subspecialists, and coordination of care may be quite challenging. In contrast to hospital-based care, where inpatient care protocols are common, and perioperative expectations are more or less predictable for most children, ambulatory cardiologists have evolved strategies of care more or less independently, based on their education, training, experience, and individual styles, resulting in highly variable follow-up strategies. We have proposed a combination proactive-reactive collaborative model with a patient's primary cardiologist, primary-care provider, and subspecialists, along with the patient and their family. The goal is to help standardise data collection in the ambulatory setting, reduce patient and family anxiety, increase health literacy, measure and address the non-cardiac consequences of complex cardiac disease, and aid in the transition to self-care as an adult.","url":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&db=mdl&AN=27373527&authtype=shib&custid=ns346513&group=main&profile=eds","isPdfLink":true,"isSAML":false,"additionalInfo":{"Authored_By":"Wernovsky G, Lihn SL, Olen MM","Journal_Info":"Publisher: Cambridge University Press Country of Publication: England NLM ID: 9200019 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1467-1107 (Electronic) Linking ISSN: 10479511 NLM ISO Abbreviation: Cardiol Young Subsets: MEDLINE","Publication_Type":"Journal Article; Practice Guideline","Published_Date":"2017-05-01","Source":"Cardiology in the young [Cardiol Young] 2017 May; Vol. 27 (4), pp. 648-662. Date of Electronic Publication: 2016 Jul 04.","Languages":"English","Electronic_ISSN":"1467-1107","MeSH_Terms":"Ambulatory Care\/*methods , Ambulatory Care\/*standards , Heart Defects, Congenital\/*surgery, Adolescent ; Cardiology\/education ; Cardiology Service, Hospital ; Child ; Humans ; United States ; Young Adult","Subjects":"Adolescent, Cardiology education, Cardiology Service, Hospital, Child, Humans, United States, Young Adult, Ambulatory Care methods, Ambulatory Care standards, Heart Defects, Congenital surgery","Title_Abbreviations":"Cardiology in the young","Volume":"27"},"header":{"DbId":"mdl","DbLabel":"MEDLINE Ultimate","An":"27373527","RelevancyScore":"808","PubType":"Academic Journal","PubTypeId":"academicJournal","PreciseRelevancyScore":"808.276306152344"},"plink":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&site=eds-live&db=mdl&AN=27373527&authtype=shib&custid=ns346513&group=main&profile=eds","upload_link":"https:\/\/search.ebscohost.com\/login.aspx?direct=true&site=eds-live&db=mdl&AN=27373527&authtype=shib&custid=ns346513&group=main&profile=eds"}